Ashley

I took this picture of Ashley sleeping last night and wanted to give a little update on how things have been going. She's had the tube for a full month now - and is doing really well overall! All of us have learned so much through the growing pains of this first month and now I'm sure the rest of the summer will go more smoothly (Dr wants her to have the tube three months). After three weeks Ash had gained a pound and a half! Her daytime eating goal is 600-700 calories and she is getting 500calories through the pediasure at night, over 10 hours. But unfortunately she came down with strep throat last week and wasn't willing to eat at all for a few days, so we may be back down a bit. I felt so badly for her!

But she is healthy again and this is her last week of school! She is happy as ever with all the parties they are having. Also, she has been swimming a lot with her tube and it doesn't seem to bother her. The only thing she really dislikes is having to get a new tube put in, which we've done once so far when it accidentally got pulled out in her sleep. That is undoubtedly the worst part. But we've gotten through that and survived! She's just a champ. And a cute one at that - if I do say so myself.